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Supporting your patients

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  • Talking to your patients about vision loss
  • Mental health support

Talking to your patients about vision loss

Have a conversation with your patient and their family to discuss the nature of LHON and poor visual prognosis. Offer genetic counseling and advise them about the potential risk factors.1,2
Paola paola
PAOLA, Living with LHON
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Advise your patients about the potential risk factors to avoid
Potential risk factors and triggers arrow-right

Mental health support

Vision loss can be a traumatic life event.3

Visual impairment associated with LHON has a tremendous impact on a patient’s psychological well-being regarding mood, interpersonal interactions, and career-related goals.3

Suggesting your patients join a LHON patient group may also be helpful in making them aware that they aren’t alone.3
Resources are available

References

  1. Yu-Wai-Man P, et al. Leber Hereditary Optic Neuropathy. In: Adam MP, Bick S, Mirzaa GM, et al, eds. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2025. 2000. Updated March 2021.
  2. Theodorou-Kanakari A, et al. Adv Ther. 2018;35(10):1510-1518.
  3. Garcia GA, et al. Clin Ophthalmol. 2017;11:417-427.