Preparing for Your Doctor Visit | LHON Questions and Tips

Preparing for your
doctor visit

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Make the most of your doctor’s appointment

When did your eyesight go blurry?
Which eye was impacted first?
Did you experience any pain when your eyesight issues began?
Are you able to distinguish colors?
Do you experience any pain when you move your eyeballs?
Do you have familiarity with multiple sclerosis (MS)?
Do you smoke or drink alcohol often?
Are you having difficulty reading?
Are you able to drive?
Can you recognize faces?
Has anyone in your family experienced sudden vision loss?
Do you know of any ancestors with vision impairment or LHON?

What is LHON?
Will my condition get worse?
Can I ever regain my vision?
Would occupational therapy and/or vision rehabilitation be helpful?
Who can I speak to for support?
How do I get the training and tools needed to adjust to living with LHON?
Is there any additional information my family should be aware of?
What should I know if I am taking prescription medicines and/or over-the-counter supplements/medicines? Are there certain ones I should avoid?

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Keeping track of your symptoms can come in

handy while discussing your condition with a doctor.

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Download LHON symptom tracker

Learn more about living with LHON

PP-RA-01632 02/2026